Ahh, yes! Halloween! Hippo’s favorite holiday!…well, one of his favorite holidays….actually every holiday is Hippo’s favorite holiday because creole people love to celebrate everything with food! And since I’ve spent the last 14 years having a love/hate relationship with food, holidays are touch n’ go. It seems my anxiety is…
Category: Crohn’s & Colitis
Crohn's & Colitis
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RIP, Peter Parker
I’ve been pretty silent on social media over the past couple of weeks, even through Hippo’s birthday and my friend’s fashion event. I haven’t journaled about coaching or anything. Why? I’ve been unsure how to proceed with my blog and advocacy. A few days before Hippo turned 6, one of…
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Agent 6MP
I’m trying to make this sound so cool, but it isn’t. It actually really sucks! So, I’ve started Mercaptopurine aka 6mp. It’s a form of chemotherapy that is sometimes used by IBD patients to regulate their symptoms, as sort of a maintenance treatment. Sounds crazy right? I’m using Chemotherapy as a…
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Arthritis vs. Disneyland
This past weekend, Hippo was off for 4 days. If your child is a LAUSD student, then you understand my pain. LOL! What can you do on a Friday with a high energy five year old where you can both have fun? You go to Disneyland! YUP! We sure did!…
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Special Needs Family
I have a love/hate relationship with labels. Like, labels/names you place on people or situations, lifestyles, etc. Labels. Sometimes I love them because they bring awareness, they get people talking and asking questions. But sometimes they are used incorrectly, or lead to embarrassment and shame. Sometimes labels carry a stigma…
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Cell Phones Don’t Work in Heaven
This past year has tested my strength in many ways. Within a few weeks of one another my uncle, my mother’s friend and my grandmother all passed away. My grandmother’s passing was my absolute breaking point. Having to help my aunt with my grandmother’s preparations and all that comes with…