I am two days post Remicade infusion. Two days from my 32nd birthday. And yet I am having the worst week ever. Having an autoimmune disease is more than having chronic pain, continuous hospital visits, and fatigue are only a portion of having the disease. I’ve said it before and…
Category: Crohn’s & Colitis
Body Over Mind
Do you ever wake up in the middle of the night in complete pain and think, this just can’t be right. No one person can possibly be in this much pain at one time…sometimes for days on end. The day before yesterday my feet began to swell after spending a…
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Autoimmune Parenthood
When you start a blog, chronicling your life and become known as some sort of expert, you open your self up to any and all opinions and comments. Most of them unsolicited and unwarranted. People literally believe that just because you have chosen to use your platform to help people,…
Crohn's & Colitis
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Flare up Fun!
Love the title? Sounds impossible, right? No, I’m not being sarcastic at all. There are ways you and your little one can still spend a day having a great time with one another. It was much easier to have flare ups when Hippo was an infant because he had his…
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HealTheVoices
Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to…
Thanks A Lot, CDC!
This past Tuesday marked the third anniversary of my colon removal. The day that I received my Ostomy. The day that saved my life. I no longer have an Ostomy, but I am forever indebted to my Ostomy for allowing me to enjoy the past three years with my family…