Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…
Category: Crohn’s & Colitis
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CrazyCreoleMommy on LifeScript TV
I was a bit nervous, as you can see. It’s a lot harder to tell your story out loud on camera, than it is typing your story behind the safety of your laptop. But for most part, I got the info out. I’ve added a little image of what my…
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The Colon-less Advocate
The first of the month brought another great trip to Washington D.C. for the Digestive Disease National Coalition’s annual Public Policy Forum & Day on the Hill. I have to say that it isn’t the easiest thing for me to just get up and go away for a few days…
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The Hero In The Airport
Last night while leaving my hotel, I saw a man that looked a lot like a man that I have admired, pretty much my entire life, Rev./Congressman/Ambassador/Mayor Andrew Young. But he’s from Atlanta and I was in Washington DC, so there was no way it could’ve been the civil rights…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Radio Silence
It’s 12:25, Thursday morning. My last post was sometime before Thanksgiving. And now I write from the late night/early morning hours. Not because of inspiration or because I have something profound to say. No, I am in just too much pain to go to sleep and, well, I missed you…