Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…
Tag: Crohn’s
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CrazyCreoleMommy on LifeScript TV
I was a bit nervous, as you can see. It’s a lot harder to tell your story out loud on camera, than it is typing your story behind the safety of your laptop. But for most part, I got the info out. I’ve added a little image of what my…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
The Fake Colon and the Terrible, Horrible, No Good, Very Bad WEEK!
ugh! Ugh! Ugh! Ouch! Ugh! Ugh! Ouch! Sigh! Ouch! Ugh! Ugh! Ugh! Ouch! Sigh! Ouch! Ugh! Ugh! Bleh! Ouch! MuthaF*$#*!!!!!! Yea, I think that just about explains what is happening in my gut right now…or lack there of. Sorry guys! I know some might say, “Such language!”. Yea, well I…
Some Heroes Wear Colostomy Bags
Whether you are apart of the Inflammatory Bowel Disease community or not, by now you’ve probably heard of Bethany Townsend, the former model who bared her two colostomy bags at the encouragement of her husband while on vacation. Her picture came across my timeline from The Colitis & Crohn’s UK…
Life As I Know It
It’s been weeks since you’ve heard from me. Mostly because it’s been weeks that I have functioned without some sort of challenge. Let’s see the last you heard from me I had received my first Remicade infusion treatment. That is when it all got rather…nutty, as Hippo would say. Within…