I was a bit nervous, as you can see. It’s a lot harder to tell your story out loud on camera, than it is typing your story behind the safety of your laptop. But for most part, I got the info out. I’ve added a little image of what my…
Tag: Jpouch
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The Colon-less Advocate
The first of the month brought another great trip to Washington D.C. for the Digestive Disease National Coalition’s annual Public Policy Forum & Day on the Hill. I have to say that it isn’t the easiest thing for me to just get up and go away for a few days…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
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Brooke of 2015
Today I spent the day with my big sister, nephew and Hippo playing & laughing in the sun. There were snacks, light saber battles, potty breaks and melt downs. My sister seasoned chicken while I cut up a second helping of snacks for the kids in her fully stocked kitchen…
Radio Silence
It’s 12:25, Thursday morning. My last post was sometime before Thanksgiving. And now I write from the late night/early morning hours. Not because of inspiration or because I have something profound to say. No, I am in just too much pain to go to sleep and, well, I missed you…
The Fake Colon and the Terrible, Horrible, No Good, Very Bad WEEK!
ugh! Ugh! Ugh! Ouch! Ugh! Ugh! Ouch! Sigh! Ouch! Ugh! Ugh! Ugh! Ouch! Sigh! Ouch! Ugh! Ugh! Bleh! Ouch! MuthaF*$#*!!!!!! Yea, I think that just about explains what is happening in my gut right now…or lack there of. Sorry guys! I know some might say, “Such language!”. Yea, well I…