The first of the month brought another great trip to Washington D.C. for the Digestive Disease National Coalition’s annual Public Policy Forum & Day on the Hill. I have to say that it isn’t the easiest thing for me to just get up and go away for a few days…
Tag: Mommy with Colitis
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Infusion Madness
June 3rd, 2014, 3:30am: I look at the clock on my computer, that’s what it reads. It’s late…or rather it’s early. But I smile because I can finally feel my eye lids starting to droop. Once again it’s been a night of chronic pain and no sleep. It’s also the…
To Remove Or Not To Remove…That Is The ?
I’m actually not really sure how to start this post. It’s such a sensitive subject for most IBD patients. The subject of colorectal surgery. And although I was diagnosed with Ulcerative Colitis 6 years ago, I have only become really familiar with all the terms and procedures two years ago,…
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A Little Bit Of The Crazy Creole Mommy’s History
Well hello there! It’s been a crazy few weeks! I’ve been honored by my favorite non-profit with a featured article on me & my IBD journey. Because of this publication, more patients and parents of patients have been able to find me. So I’ve been busy returning emails and sharing…