The first of the month brought another great trip to Washington D.C. for the Digestive Disease National Coalition’s annual Public Policy Forum & Day on the Hill. I have to say that it isn’t the easiest thing for me to just get up and go away for a few days to extremely cold weather with […]
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has been brutal. And those of […]
June 3rd, 2014, 3:30am: I look at the clock on my computer, that’s what it reads. It’s late…or rather it’s early. But I smile because I can finally feel my eye lids starting to droop. Once again it’s been a night of chronic pain and no sleep. It’s also the night before my first Remicade […]
I’m actually not really sure how to start this post. It’s such a sensitive subject for most IBD patients. The subject of colorectal surgery. And although I was diagnosed with Ulcerative Colitis 6 years ago, I have only become really familiar with all the terms and procedures two years ago, and not really understanding the […]
Well hello there! It’s been a crazy few weeks! I’ve been honored by my favorite non-profit with a featured article on me & my IBD journey. Because of this publication, more patients and parents of patients have been able to find me. So I’ve been busy returning emails and sharing resources and haven’t been able […]
