When patients have a seat at the table
Tag: parenting
Treatments + Motherhood
I didn’t know my disease and treatment plan would take a dramatic turn. But somehow it was right on time!
Finding My Way Back
Living with a chronic condition is like living on a rollercoaster. You have your ups and downs, but then there are the loopity loops that are fast, intense and back to back. Those are the kickers. The ones that take you weeks to recover from. That’s where I am now….
Step Therapy while Mommying
Cured… just kidding! I clearly remember the GI’s voice when she said, “Cure” while discussing my upcoming surgery. I remember the weight that lifted from my chest. I pictured myself running after my toddler in the park without complication. I can still feel the smile on my face and the…
More Than Lab Rats
This piece has been entered in the Patients Have Power Writing Contest run by Clara Health designed to raise awareness about clinical trials. I am passionate about this cause and hope it will help raise much needed awareness about the power of breakthrough research. Being a single mother living with…
Let Me Reintroduce Myself Part II
In 2009, I welcomed my little Hippo. He was perfect. No complications. He was insured. My kid had health insurance, his father had health insurance…suddenly, I did not, again. The bliss of having health insurance because of my high risk pregnancy, was taken away as quickly as I received it….