The more I look at that title, the more I realize I need sleep and lots of it. But no time for that because I’m on my way to San Diego. That’s right, Crazy Creole Mommy is on the road again. My bed misses me, surely, but there is much…
Tag: Ulcerative Colitis
Schooling Coaches
Let’s face it. I’m an easy, cushioned target for nasty looks, weird questions and misguided innuendo. I’m a single mother of color living in a upper middle class neighborhood, with a chronic illness & disability who works from home & coaches little league. And although we have settled into the 21st…
Musings Of A Chronically Ill Patient
Last night I found myself on the toilet for the 6th time due to stress, lack of sleep and a case of pouchitis. There was a scream caught in my throat. There was pride laying on my brain. Guilt weighing down my heart. I was wrestling with my emotions and…
Back on the field
So today was our second game, but MY first game out on the field. I missed first game as I was in Pennsylvania taking the BioExperience tour with Janssen. But that is another upcoming post, so stay tuned for that! Yes, today was my first game, not even a full…
At My Weakest, I Am Still The Epitome of Strength
Upon my return from Philadelphia this past weekend, I dove back into helping my grandma move into her new place along with family members and friends. This past weekend was such an amazing time in Philadelphia as I toured the Janssen BioExperience with my fellow IBD advocates. It was a…
Practice Faux Pas
Week 2. Second Practice. Game on Saturday. Next treatment is in two weeks. No pouchitis. IBD fatigue. Here’s what I’ve learned so far about coaching baseball Rule #1: When you’ve had sudden weight gain from steroids or other medications from your chronic illnesses, work out in proper sporting equipment! Okay,…