Do you ever wake up in the middle of the night in complete pain and think, this just can’t be right. No one person can possibly be in this much pain at one time…sometimes for days on end. The day before yesterday my feet began to swell after spending a…
Tag: Ulcerative Colitis
Crohn's & Colitis
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Flare up Fun!
Love the title? Sounds impossible, right? No, I’m not being sarcastic at all. There are ways you and your little one can still spend a day having a great time with one another. It was much easier to have flare ups when Hippo was an infant because he had his…
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HealTheVoices
Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to…
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J-Pouch Life Tools
Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Radio Silence
It’s 12:25, Thursday morning. My last post was sometime before Thanksgiving. And now I write from the late night/early morning hours. Not because of inspiration or because I have something profound to say. No, I am in just too much pain to go to sleep and, well, I missed you…