Hey Ya’ll!! I’m finally back sitting down! LOL! I came back from D.C. last week, but I was so sick with an arthritis flare and then had some work with Happy Family Brands over the weekend. I want to talk a lot about D.C., what I did and who I met. But first I wanted to share something with you that I wrote on the plane ride home from D.C. back to Los Angeles.
When I was younger the best part of the day was being able to catch ABC’s Nightly News or 20/20 with my mom. It was very rare that she was home early enough for such a thing. But when we did, it was awesome! There were smoked oysters, sliced green apples, garlic cheese, crackers and either strawberry or Vanilla with chocolate covered almonds. Or the ultimate, Coke Floats! And of course the love of my preschool life, Peter Jennings! One would think that at 3 years old, I probably didn’t understand a damn thing Peter Jennings, Hugh Downs or Barbara Walters were talking about. Not true. I understood general things. I knew whom & recognized the President and other popular world leaders at the time. I generally understood the significance of the Berlin Wall coming down and watched it come tumbling down! I understood, America to be the most powerful country in the world. I knew that we were in a disagreement with a place called The Soviet Union and the term The Cold War was associated with this. I knew where the President lived. I knew there was a supreme court and I knew there were a group of lawmakers called Senators & Congressmen. These things I understood. Not strictly from Peter Jennings. Although I love to give him credit for everything because I just might still be in love with him! But really I got it from listening to my grandmother & aunts. Reading the newspaper with my uncle and grandfather. And, of course, watching Nightly News with Peter Jennings with mommy.
In 8th grade, I met my Honors American History teacher, Mr. Don LaFraniere. He was funny, engaging and he gave it to us straight. He took my fascination for American History and policy and morphed it into an obsessive love for stories told in the history books and the ones left out. I broke down the government by administration. I was obsessed with the figuring out how the evolution of The People went from muskets & slave ships to a multiracial gender-neutral classroom. Of course I did all this between X-Files episodes and speech tournaments. Nerd Alert! Now that my parents and family have read this, they can now see why my first serious boyfriend was Mr. Brilliant Political Strategist. And I’m sure now the rest of you can see why my son is obsessed with Wolf Blitzer, Vice, Mr. Orange Speaker, The Son Pwesident Bush & Pwesident Obama. And why at four, I shattered his entire world with the news of Abraham Lincoln’s death…from over 100 years ago. But I digress.
Now they say that the entertainment and political worlds are intertwined. And to a certain extent, I would have to agree. Most creative artists are passionate, smart individuals with strong convictions and ties to community activism. So it doesn’t surprise a lot of my friends and family to see me jetting off to Washington D.C. to advocate for something I believe in. I’ve always had an interest in politics and a passion for various subjects like education, civil rights, children’s rights, etc. But nothing has hit close to home like my need to advocate for Gastrointestinal Diseases & Cancers. Not to say that I will ever stop the fight against AIDS or the fight for a better education system for ALL children. One can multi-task! And to be honest the way Ulcerative Colitis took over my body in such a short amount of time, I feel like we don’t have enough time. I know that the time for G.I advocacy is NOW. So, here I am writing on a plane leaving Washington D.C. after spending two days in our Nation’s capitol learning how to make your message heard.
Now as much as I have advocated and LOVE and am so GRATEFUL for Healthcare Reform, you know I am also a believer in the idea that a bill or a resolution can always be modified and SHOULD be modified. No bill is perfect. Although without Obamacare, I’d probably be broke and dead, I still think it needs a little ratification. We need to add medical research funding into our healthcare plan! It just doesn’t make sense that we don’t. Okay, so now we are giving our citizens healthcare. I think the time has come to start funding medical research on some of these deadly diseases. Without research we are unable to keep the races for cures a float. Without research how can we find a way to properly diagnose and treat? Do you know that within three years of diagnosis of Ulcerative Colitis, I had three different treatments? And one of those treatments included medication for IBS, not IBD. I’ve been tested for Crohn’s, Lupus, Fibromaylgia, Leukemia, & Celiac Disease while already having an Ulcerative Colitis diagnosis. If we put a little more money into researching these diseases, I can almost guarantee we will cut the percentage of misdiagnosis in half. That will also cut the amount of x-rays, CT scans and blood tests a single patient will have to take and spend money on.
What I’ve learned over the years in my love of policy that a lot of things that aren’t or shouldn’t be political end up turning democrat against republican. But these issues, the issues of health and healing our citizens shouldn’t be used as a tennis ball in the Senate & House chamber. Nor should it be a bargaining chip for re-election. It should just get down. I understand the game, but I think the game sucks. People are dying. There’s nothing political about dying.
Follow me on Twitter and Instagram to see what I’m doing in Washington D.C. for Crohn’s & Colitis! I’m getting my Mr. Smith on and standing up for Inflammatory Bowel Disease patients on The Hill with the Digestive Disease National Coalition March 2nd-March 3rd.
Okay that’s probably the cheesiest title I’ve given a post in a long time, but I am gosh darn so excited and honored to be apart of this years Take Steps For Crohn’s & Colitis Los Angeles as Team Captain of Team Crazy Creole Mommy & as Take Step’s Adult Honored Hero for Los Angeles!!! I know right?! Whaaat?! It’s the coolest thing to have the blog recognized by The Crohn’s & Colitis Foundation as a resource for other patients with Inflammatory Bowel Disease.
So now I need it’s time to put my fundraising cap on and raise as much money as possible for those all over. Particularly younger patients who wish to attend Camp Hope and local support groups through The Crohn’s & Colitis Foundation. With 1 in every 200 people having a form of IBD, it’s time to make it a household name. And while we would all love to find a cure for Inflammatory Bowel Disease and the diseases it triggers, we have to care for the patients & survivors in the meantime. There are patients dying slowly from Crohn’s or Ulcerative Colitis. There are patients with JPouches and Ostomies that don’t have access to education, medical help or supplies that they need for their new way of life. It’s time we start giving these patients a better quality of life until there is a cure!
Please support Me & Team Crazy Creole Mommy. Walk with us! And if you can’t walk, please donate!
You haven’t heard from me in a while because it’s just been an interesting two weeks. I take that back, it’s been an interesting few months. We started off the year with Jaxon’s eye surgery. Then we followed that with pouch blockages, a fissure, Jax had an ear infection AND bronchitis, then we topped it off with good ol’ pouchitis. Pouchitis is an interesting little diddy that I will have a full post on a little bit later, along with some info on my first pouch scope. This post, this post is all about love and fun on Valentine’s Day. I know, I know, my post Valentine’s Day post is a few days off…but did you read all I’ve had to go through lately. I didn’t even tell you about the Sunday afternoon I spent in emergency with a sliced thumb…yea, exactly!
Okay so love, single parenthood and Valentine’s Day. I posted something on Single Mom Planet about the idea of Valentine’s Day and what it means to the single parent. Especially the single parent who’s Valentine is far away at the moment…or just doesn’t exist! What do you do on Valentine’s Day except be reminded that you are the only person without a date. Well, you can stop being so melodramatic and realize that you are in fact NOT the only person without a date. AND that most of the people scrambling to find someone to have a date with or something to do with said date. All because we like to market holidays for consumer purposes. Holidays aren’t really meaningful anymore. Valentine’s Day is about love and sharing love. And who else is full of affection, love and selflessness than a single parent? Why worry about a date with someone else, when you have the love(s) of your life right there in your house, your kid(s)! So that’s what I did. I spent my Valentine’s Day with the absolute love of my life, my kid!
I let him decide what he wanted to do for the day. He said he wanted to go ice skating, then dress up and have sushi and then go play video games. When I woke up in arthritis flare up, I realized we had to make some adjustments to the schedule. LOL! Ahh the joys of autoimmune life! So, I changed the ice skating plan to family movie afternoon fun. I rented Honey I Shrunk The Kids on iTunes on the iPad. Then I hooked the iPad up to the television so we could watch it on the big screen. I decorated the table in some fun festive stuff from Target (Jaxon’s favorite store). I got treats, like hand pies, brownies that I cut into bites & decorated cupcakes from Big Sugar Bakeshop. And I ordered pizza. I also baked a Vegan cheese pizza for him to keep the dairy down…shhh…don’t tell Jax! Because standing up was very hard that day, I used the Horizon Milk singles and the Honest Kids Tea pouches so he could just help himself. If you haven’t tried Honest Kids yet, please do! You know me and my anti-juicebox life, so there must be something to this. Here’s the thing, Jax is going to drink something out of a pouch or box or want a CapriSun type of stuff. So, I’m heading it off by introducing him to Honest Kids. I personally like Honest Tea drinks. They are tasty, low in sugar, antioxidants and are a certified Fair Trade tea. Jax likes the flavor and I know there’s no added sugar, it’s less sugar than the average juice box and it’s certified organic. So yea, I’d give them a try if I were you. I also got the individual popcorn bowls that you pop in the microwave. That way everyone go there own IF they even wanted popcorn. Less work and standing up for me!
Okay, so we watched the movie, ate and laughed our faces off. I actually forgot how cute that movie really is. Love introducing the classics from my childhood to Jax. After that we got dressed and made our 7:45 reservation at our favorite local sushi spot, Iwata. It was so stinkin’ cute! Jax ordered our sushi (of which he ate the most) and then took my credit card and paid the bill! Then we walked across the street to El Torito to meet my mom and grandma for dessert. Yes, you know my sugar radar was in over drive, buuuut…it was a holiday and a few days before Jax was really having a hard time with some emotional stuff re: his dad living in another state, and all that other stuff that comes with parents breaking up. So, I let the kid live for a few hours! And we sat there for an hour or so and chit chatted with UmMa & GG. Mind you my face was on fire from a sinus infection AND my joints hurt from the arthritis flare up, but I didn’t want to go home yet. I was actually having the best time ever!
Once we said goodbye to them, we headed over to UltraZone to play video games. He likes to go to UltraZone because my friends work there, he knows all the ladies, they remind him how cute he is and they have his favorite games. Half way through, my friend decides that Jax should try lasertag! Now, do you remember when I said we dressed up for dinner? And you know Jaxon’s philosophy! Real moms wear dresses, and high heels and makeup. So of course I was in a dress, high heels and makeup. Lasertag?! I am not playing laser…okay, okay, lasertag! There I was in 4 inch high heel boots (that were already killing me), a stuffy nose, a sore back and a crickety hip chasing down the red and yellow teams, led by Commander HippoMaPotomus in his hat & bowtie! We didn’t get home until 12:30am.
It was the BEST VALENTINE’S DAY EVVVVEEEEERRRR!!!
Some of you may know about Hippo’s love of national news stations & it’s journalists. I was the exact same way when I was growing up. In fact, I am still quite in love with Peter Jennings! Of course I’ve also grown to love Chris Cuomo, Don Lemon, Arthel Neville, Brian Williams, Chris Matthews, Robin Roberts, Diane Sawyer, Bill Weir, Rachel Maddow…okay you get the point…I love national news. I’ve past this love down to Jax. I think it’s because before preschool he was home with me everyday and for the most part I kept CNN, MSNBC or BBC on while he did his lessons or I was sick in bed with a flare up. If I was sick in bed with a flare up, quite often he was in laying in bed or on the couch with me if I didn’t have a nanny that day. So between Yo Gabba Gabba & Curious George, I’d catch a little bit of the Situation Room or Hardball, or something like that.
Anyway, Jax grew fond of some of these Journalists. But it was CNN & ABC News that stuck out the most to him. Not sure why, but those are his favorites. Yes, my four year old loves watching CNN’s The Situation Room w/ Wolf Blitzer & ABC’s Nightly News w/ Diane Sawyer! He’s such a huge fan Of CNN (what he calls Sienna News), that when he found out one of my mom’s clients moved over to CNN from Fox, he told all of his friends at school. He was so excited at the thought that she would possibly see Wolf Blitzer one day at work! My son LOVES Wolf Blitzer! I have figured out, for the most part, why my four year old loves Wolf Blitzer so much.
The man’s name is Wolf…Blitzer! It’s one of the reasons we all LOVE Wolf Blitzer.
Jax is convinced that Wolf Blitzer is Santa’s brother.
His name is Wolf Blitzer!
He has seen President Obama on The Situation Room. I explained The President has a room in The White House, actually called, The Situation Room. Score Preschooler cool points for CNN!
Wolf Blitzer did a segment on President Bush’s paintings of his dogs, which Jax absolutely loves. Yes, this liberal democrat (or demoCRAB as Jax says) has a bipartisan son who LOVES President Bush. Ironically he’s even taken up calling VP Biden, “Vice” just like President Bush called VP Cheney…weird! AND he said even though he’s a “democrab” and likes some “democrab pwesidents” , he wanted to know if it was okay to vote for a “repopelicun” for “pwesident” too. I told him, that he should vote for the person he thought would help EVERYONE in the country. And that your political party & religion cannot make you a good or bad person, only you can do that. To which he answered good, because he liked some “repopelicun pwesidents” too and he may vote “repopelicun” when he grows up………. moving on…………..
Wolf Blitzer is named, Wolf Blitzer!
Okay, so basically my son is a huge Wolf Blitzer fan. When he is home he watches The Situation Room while coloring or playing with his action figures. He asks questions and engages me during the hour long program (of course I mute or change channels when anything disturbing or too grown up is on.). So, in Jax’s mind, Wolf Blitzer is news. He knows it all and he shares it with the world.
A couple of days ago, Hippo asked me where did all of the Presidents live now (that they’re out of The White House). I told him where Former Presidents Carter, Bush, Clinton and Bush all reside now. But then it got weird. The following is based on a Hippo’s True Story.
Hippo: But what about Abraham Lincoln?
Mommy: Well, Abraham Lincoln is dead, honey.
*silence* a look of shock and confusion crosses Hippo’s face. And in an over exaggerated interpretation of how an adult reacts to something shocking he replies:
Hippo: WHAT?! WHEN?!
Mommy: Oh honey, President Lincoln died over 100 years ago.
Hippo: ONE HUNDRED YEARS AGO?! ARE YOU KIDDING ME?!!
He starts pacing with his hand plastered to his forehead, trying to process this breaking news. He starts mumbling “but” & “I don’t beweave dis!” and other phrases he is quite sure adults used when they are in complete shock! Then he turns on his heel to face his mommy again and says in a voice that is laced with bitterness, hurt and betrayal.
Hippo: Wolf Blitzer, never told me THAT!
Then he storms out leaving mommy confused as to what just happened. Before she could let out the laugh that had been building in her throat, Hippo returns.
Hippo: Did he tell da Pwesident?!
Mommy: The President knows.
Hippo: Well, Thank you God for dat!
And that ladies & gentlemen is the day that Lincoln died! R.I.P. President Lincoln. We love you!