Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to…
Tag: advocacy
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The Hero In The Airport
Last night while leaving my hotel, I saw a man that looked a lot like a man that I have admired, pretty much my entire life, Rev./Congressman/Ambassador/Mayor Andrew Young. But he’s from Atlanta and I was in Washington DC, so there was no way it could’ve been the civil rights…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
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To Vice, with Love…
Dear Vice…It’s me, Jaxon. Yes, that’s right my little political preschooler exercised his right as an American Citizen in March 2014 when he asked me to help him write a letter to the Vice President of the United States. And it wasn’t just some little, “Hi, how are you”, type of…
Life As I Know It
It’s been weeks since you’ve heard from me. Mostly because it’s been weeks that I have functioned without some sort of challenge. Let’s see the last you heard from me I had received my first Remicade infusion treatment. That is when it all got rather…nutty, as Hippo would say. Within…
Living To Fight, Fighting To Live
I was just about to go bed. I had put on my pajamas and was drinking my last sips of water when I checked Facebook for the last time. It’s World IBD Day, so I was just looking for some more updates from people in the community and some of my…