Like most of you living with a chronic illness, the dark cloud of the possibility of health insurance being revoked, is hanging over your head as we step into the new year. Grant it, ACA (Affordable Care Act) is not in fact, affordable for a lot of families. Needless to say,…
Tag: advocacy
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The Advocate
Someone once asked me what did I hope to achieve with my advocacy? Did I really believe in change? I answered: “I hope to make the world a little bit better for my son and all the other children that are just as human as my child. And do I…
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Empowerment begins with Congress!
Such a weird title, right? What does your level of empowerment have to do with Congress? Well, after last week’s election most of us were left feeling befuddled, bewildered and blind sighted. Wasn’t so much about the politics. Politicians win and lose all the time and we move on. But…
Crazy Creole Mommy In The Diego!
The more I look at that title, the more I realize I need sleep and lots of it. But no time for that because I’m on my way to San Diego. That’s right, Crazy Creole Mommy is on the road again. My bed misses me, surely, but there is much…
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From The Young Advocate
Some of my first experiences with advocacy came from, Holly Robinson Peete. Being friends with her and then working for her, showed me a lot about standing up and standing your ground without reservation. She stood up for her dad & other Parkinson’s Disease Patients without hesitation. And when her…
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For The Love of Biologics
A few weeks ago I was privileged to enjoy the BioExperience, Janssen along with my fellow IBD Advocates friends. You might know them: About IBD Ryan The Crohn’s Guy Kelly On The Run/#PurpleProject Colitis Ninja Pretty Rotten Guts Caring For Crohn’s Inflamed & Untamed Dan Sharp IBD Gutless & Glamorous Crohnie…