Dear Congress, Trying to figure out something for my mom. Since you’ve decided that $8b over the next five years is suitable for high risk pools. When a large state like mine houses me, my son and my youngest brother (all with chronic conditions), and we max out of our…
Tag: Autoimmune Disease
Crazy Creole Mommy Fav
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That one time I was, Cured.
This week I am celebrating the 5th anniversary of my colectomy. The surgery was done on April 7, 2012. But, April 3rd, was the first day I had ever heard the word, Cure, associated with Inflammatory Bowel Disease. There was this cure to IBD that people were getting. The removal…
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The Punishment of Living
I wasn’t an angel child. I got in trouble every now and again. But I never ditched school. I didn’t lie to my parents. I didn’t commit crimes. I’ve never been arrested. I volunteer & donate to charity. I’m raising my child. I help out my community. I am a…
Taking It To Facebook Live
If you follow me on Facebook, you know Hippo & I love to utilize the new Facebook Live status updating mechanism! It’s a great way to interact with people in real time! I’ve been using it for fun and for advocacy. TONIGHT, I will use it for advocacy. Last week,…
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Foul, on American Healthcare!
Like most of you living with a chronic illness, the dark cloud of the possibility of health insurance being revoked, is hanging over your head as we step into the new year. Grant it, ACA (Affordable Care Act) is not in fact, affordable for a lot of families. Needless to say,…
They’re Home!!
Some the hardest moments in parenting happens during Winter & Summer break. Especially if you have any type of autoimmune disease that impedes on your mobility & energy and you live in an apartment in the center of the city. Seriously! If I had a backyard, I’d send Jax and…