Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to…
Tag: education
Thanks A Lot, CDC!
This past Tuesday marked the third anniversary of my colon removal. The day that I received my Ostomy. The day that saved my life. I no longer have an Ostomy, but I am forever indebted to my Ostomy for allowing me to enjoy the past three years with my family…
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J-Pouch Life Tools
Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…
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CrazyCreoleMommy on LifeScript TV
I was a bit nervous, as you can see. It’s a lot harder to tell your story out loud on camera, than it is typing your story behind the safety of your laptop. But for most part, I got the info out. I’ve added a little image of what my…
Crazy Creole Mommy Fav
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Bathtime & Carpool Conversations
Bathtime & morning car rides to school with Hippo are always…interesting. I mean he’s a five year old that loves Batman, My Little Pony, Star Wars & Wolf Blitzer. You really never know where the conversation is going to go. Last night was one of those nights. I had been…
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The Colon-less Advocate
The first of the month brought another great trip to Washington D.C. for the Digestive Disease National Coalition’s annual Public Policy Forum & Day on the Hill. I have to say that it isn’t the easiest thing for me to just get up and go away for a few days…