Well here we are, sitting in the airport waiting to board the plane. Hippo has been so excited he has been singing, humming, talking, hopping, non-stop today. Which means one thing…he’ll be fast asleep before we taxi out! LOL! How am I doing? Not so great. BUT the excitement on…
Tag: Mommy with Autoimmune Disease
Body Over Mind
Do you ever wake up in the middle of the night in complete pain and think, this just can’t be right. No one person can possibly be in this much pain at one time…sometimes for days on end. The day before yesterday my feet began to swell after spending a…
Crohn's & Colitis
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Flare up Fun!
Love the title? Sounds impossible, right? No, I’m not being sarcastic at all. There are ways you and your little one can still spend a day having a great time with one another. It was much easier to have flare ups when Hippo was an infant because he had his…
Blog
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J-Pouch Life Tools
Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…
Blog
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Radio Silence
It’s 12:25, Thursday morning. My last post was sometime before Thanksgiving. And now I write from the late night/early morning hours. Not because of inspiration or because I have something profound to say. No, I am in just too much pain to go to sleep and, well, I missed you…