If you didn’t know by now, I am a mom. A mom living with a chronic condition called ulcerative colitis. Actually, I’ve got about 5 autoimmune conditions that manifest in all sorts of different types of ways. But ulcerative colitis has been the foundation, the root, from which most of…
Tag: Ostomy
Crohn's & Colitis
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Nevermind…I forgot I had beets!
Have you ever experienced sheer panic?! I mean, stomach drop to your knees, heartbeat drumming loudly in your ears, spontaneous funk sweat, mouth dry as a desert panic? The kind where you are sure this is the end of your life. You are positive death is leaning over your shoulder…
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Surviving Summer & the 4th of July
I’m about as patriotic as they come. I love my country. I love our flag & symbols of patriotism. I love the pomp & circumstance surrounding the 4th of July. What I don’t like is, having an autoimmune disease in middle of summer. I love being outdoors. But too often…
Crazy Creole Mommy Fav
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That one time I was, Cured.
This week I am celebrating the 5th anniversary of my colectomy. The surgery was done on April 7, 2012. But, April 3rd, was the first day I had ever heard the word, Cure, associated with Inflammatory Bowel Disease. There was this cure to IBD that people were getting. The removal…
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Cycling For A Cure
I was suppose to be in Washington D.C. this week with the CCFA. But the traveling schedule I had during Thanksgiving to get Jax to and from Kansas to be with his grandparents and father, took a serious toll on me. I am suffering from a full on AS flare…
Thanks A Lot, CDC!
This past Tuesday marked the third anniversary of my colon removal. The day that I received my Ostomy. The day that saved my life. I no longer have an Ostomy, but I am forever indebted to my Ostomy for allowing me to enjoy the past three years with my family…