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Category: Crohn’s & Colitis
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Cycling For A Cure
I was suppose to be in Washington D.C. this week with the CCFA. But the traveling schedule I had during Thanksgiving to get Jax to and from Kansas to be with his grandparents and father, took a serious toll on me. I am suffering from a full on AS flare…
When, For Worse becomes, Longterm Compassionate Care
I just read that Yolanda & David Foster are divorcing after being together for nine years, four of those spent in marriage. That’s a very long time. Longer if you are with someone with a chronic illness because some of those days tend to be long, trying and frustrating. I…
Holidays: Joy & Sorrow
2016 has been a downright year of craziness. I lost my uncle, close family friend, grandmother, another close family friend, ANOTHER close family friend, one of my reader’s son/Ulcerative Colitis patient and then my childhood best friend lost her grandmother. These were all people who have known since before I…
Crohn's & Colitis
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Trick O’ Treat!
Ahh, yes! Halloween! Hippo’s favorite holiday!…well, one of his favorite holidays….actually every holiday is Hippo’s favorite holiday because creole people love to celebrate everything with food! And since I’ve spent the last 14 years having a love/hate relationship with food, holidays are touch n’ go. It seems my anxiety is…
Crohn's & Colitis
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RIP, Peter Parker
I’ve been pretty silent on social media over the past couple of weeks, even through Hippo’s birthday and my friend’s fashion event. I haven’t journaled about coaching or anything. Why? I’ve been unsure how to proceed with my blog and advocacy. A few days before Hippo turned 6, one of…