I’m trying to make this sound so cool, but it isn’t. It actually really sucks! So, I’ve started Mercaptopurine aka 6mp. It’s a form of chemotherapy that is sometimes used by IBD patients to regulate their symptoms, as sort of a maintenance treatment. Sounds crazy right? I’m using Chemotherapy as a…
Category: Crohn’s & Colitis
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Arthritis vs. Disneyland
This past weekend, Hippo was off for 4 days. If your child is a LAUSD student, then you understand my pain. LOL! What can you do on a Friday with a high energy five year old where you can both have fun? You go to Disneyland! YUP! We sure did!…
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Special Needs Family
I have a love/hate relationship with labels. Like, labels/names you place on people or situations, lifestyles, etc. Labels. Sometimes I love them because they bring awareness, they get people talking and asking questions. But sometimes they are used incorrectly, or lead to embarrassment and shame. Sometimes labels carry a stigma…
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Cell Phones Don’t Work in Heaven
This past year has tested my strength in many ways. Within a few weeks of one another my uncle, my mother’s friend and my grandmother all passed away. My grandmother’s passing was my absolute breaking point. Having to help my aunt with my grandmother’s preparations and all that comes with…
Finding the Light on my Darkest of Days…
I am two days post Remicade infusion. Two days from my 32nd birthday. And yet I am having the worst week ever. Having an autoimmune disease is more than having chronic pain, continuous hospital visits, and fatigue are only a portion of having the disease. I’ve said it before and…
Body Over Mind
Do you ever wake up in the middle of the night in complete pain and think, this just can’t be right. No one person can possibly be in this much pain at one time…sometimes for days on end. The day before yesterday my feet began to swell after spending a…