Do you hear me, do you feel me? We gon’ be alright. My Love, we gon’ be alright! My cousin’s house caught on fire. My back has caused me so much pain that I was nauseous. My son’s best friend is moving away. Life is happening right now and it’s…
Category: Random Thoughts
Crazy Creole Mommy Fav
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Back on the field
So today was our second game, but MY first game out on the field. I missed first game as I was in Pennsylvania taking the BioExperience tour with Janssen. But that is another upcoming post, so stay tuned for that! Yes, today was my first game, not even a full…
Crohn's & Colitis
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At My Weakest, I Am Still The Epitome of Strength
Upon my return from Philadelphia this past weekend, I dove back into helping my grandma move into her new place along with family members and friends. This past weekend was such an amazing time in Philadelphia as I toured the Janssen BioExperience with my fellow IBD advocates. It was a…
Blog
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Practice Faux Pas
Week 2. Second Practice. Game on Saturday. Next treatment is in two weeks. No pouchitis. IBD fatigue. Here’s what I’ve learned so far about coaching baseball Rule #1: When you’ve had sudden weight gain from steroids or other medications from your chronic illnesses, work out in proper sporting equipment! Okay,…
Blog
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Cycling For A Cure
I was suppose to be in Washington D.C. this week with the CCFA. But the traveling schedule I had during Thanksgiving to get Jax to and from Kansas to be with his grandparents and father, took a serious toll on me. I am suffering from a full on AS flare…
When, For Worse becomes, Longterm Compassionate Care
I just read that Yolanda & David Foster are divorcing after being together for nine years, four of those spent in marriage. That’s a very long time. Longer if you are with someone with a chronic illness because some of those days tend to be long, trying and frustrating. I…