For the past five years I’ve been in the trenches of the political, miscommunication and awareness fight of advocating for patients living IBD. I am the unlikely advocate. I was a private person & I’m not the most knowledgeable person when it comes to science. But I made a connection with…
Tag: Crazy Creole Mommy Chronicles
That one time I was, Cured.
This week I am celebrating the 5th anniversary of my colectomy. The surgery was done on April 7, 2012. But, April 3rd, was the first day I had ever heard the word, Cure, associated with Inflammatory Bowel Disease. There was this cure to IBD that people were getting. The removal…
Taking It To Facebook Live
If you follow me on Facebook, you know Hippo & I love to utilize the new Facebook Live status updating mechanism! It’s a great way to interact with people in real time! I’ve been using it for fun and for advocacy. TONIGHT, I will use it for advocacy. Last week,…
The Mean Green Mom
6 years ago today, I remember standing in my shower in a fit of tears. I was about a year and half into motherhood. I was three years into IBD life post diagnosis. I was two months into life in Texas. I was flaring and I stood holding a fistful…
Empowerment begins with Congress!
Such a weird title, right? What does your level of empowerment have to do with Congress? Well, after last week’s election most of us were left feeling befuddled, bewildered and blind sighted. Wasn’t so much about the politics. Politicians win and lose all the time and we move on. But…
thankful
With Thanksgiving coming up, we usually try and take this time to reflect on all the amazing things in our life. But recently I’ve been thinking and thinking and thinking some more. It wasn’t necessarily sparked by the season of giving, I’ve just been inside of my head. Thinking. Mostly…
