Like most of you living with a chronic illness, the dark cloud of the possibility of health insurance being revoked, is hanging over your head as we step into the new year. Grant it, ACA (Affordable Care Act) is not in fact, affordable for a lot of families. Needless to say,…
Tag: Crohn’s Disease
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The Hippo & Wolf
Four years ago, I sat in the room with Hippo. He was coloring at his little desk, facing me with his back to the television. I was watching CNN’s Situation Room w/ Wolf Blitzer. I looked up at the time and realized that one of Hippo’s favorite shows was about…
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Cycling For A Cure
I was suppose to be in Washington D.C. this week with the CCFA. But the traveling schedule I had during Thanksgiving to get Jax to and from Kansas to be with his grandparents and father, took a serious toll on me. I am suffering from a full on AS flare…
The Sleepy Coach
It’s been a while since I’ve made a journal entry. Well, I haven’t been feeling well. By not feeling well I mean, I started a new medication and it’s kicked me in the butt. Some people aren’t aware of this, but cancer patients aren’t the only patients taking forms of…
Shouting Out To Congress…
…and anyone who will listen. Today a bunch of advocates for Crohn’s & Colitis joined the CCFA in Washington DC to put a voice to IBD. They are sharing their stories and trying to change the way IBD patients are treated by the States, the Nation, Health Insurance Companies and…
Random Thoughts
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A Spoon Full Of Reality Helps The Medicine Go Down
I have to say that God knew what he was doing when he guided my spirit to my mother. She is the best person to mentor me through this life. I don’t see it everyday, but sometimes my heart opens up and I hear her. I heard her tonight. My…