A few weeks ago I was privileged to enjoy the BioExperience, Janssen along with my fellow IBD Advocates friends. You might know them: About IBD Ryan The Crohn’s Guy Kelly On The Run/#PurpleProject Colitis Ninja Pretty Rotten Guts Caring For Crohn’s Inflamed & Untamed Dan Sharp IBD Gutless & Glamorous Crohnie…
Tag: IBD
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Musings Of A Chronically Ill Patient
Last night I found myself on the toilet for the 6th time due to stress, lack of sleep and a case of pouchitis. There was a scream caught in my throat. There was pride laying on my brain. Guilt weighing down my heart. I was wrestling with my emotions and…
Crohn's & Colitis
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At My Weakest, I Am Still The Epitome of Strength
Upon my return from Philadelphia this past weekend, I dove back into helping my grandma move into her new place along with family members and friends. This past weekend was such an amazing time in Philadelphia as I toured the Janssen BioExperience with my fellow IBD advocates. It was a…
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Practice Faux Pas
Week 2. Second Practice. Game on Saturday. Next treatment is in two weeks. No pouchitis. IBD fatigue. Here’s what I’ve learned so far about coaching baseball Rule #1: When you’ve had sudden weight gain from steroids or other medications from your chronic illnesses, work out in proper sporting equipment! Okay,…
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Pain Management without the Pain Management
I hate the phrase pain management. Seriously, I do. I really despise it. Whenever I am in the hospital, right after I hear the words, “Let’s manage your pain.”, they shoot me up with Zofran and Diladid, then I’m slurring my words and snoring…for 3 hours. After 3 hours I…
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New Baby + IBD= Stay At Home Mom? Work Mom?
Adulting with an Autoimmune Disease is not the best thing. It’s not really a good thing. It’s the amount of responsibility, pressure and stress that makes it harder to deal with. You have work, bills, marriage/relationships, children and the news. But such is life. Some of us with autoimmune diseases…