I am two days post Remicade infusion. Two days from my 32nd birthday. And yet I am having the worst week ever. Having an autoimmune disease is more than having chronic pain, continuous hospital visits, and fatigue are only a portion of having the disease. I’ve said it before and…
Tag: Jpouch
Blog
Read more
He Came…He Saw…He Hiccuped!
Last week I took mini Senator to be, Hippo Honeycutt to Washington D.C. That’s right, Hippo went home! LOL! I mean, the way he ran down the jet way once we landed in D.C., you would think he was heading to his grandma’s house full of biscuits! I don’t think…
Up, Up and Away
Well here we are, sitting in the airport waiting to board the plane. Hippo has been so excited he has been singing, humming, talking, hopping, non-stop today. Which means one thing…he’ll be fast asleep before we taxi out! LOL! How am I doing? Not so great. BUT the excitement on…
Body Over Mind
Do you ever wake up in the middle of the night in complete pain and think, this just can’t be right. No one person can possibly be in this much pain at one time…sometimes for days on end. The day before yesterday my feet began to swell after spending a…
Blog
Read more
HealTheVoices
Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to…
Blog
Read more
J-Pouch Life Tools
Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…