It’s been a while since I’ve made a journal entry. Well, I haven’t been feeling well. By not feeling well I mean, I started a new medication and it’s kicked me in the butt. Some people aren’t aware of this, but cancer patients aren’t the only patients taking forms of…
Tag: Jpouch
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Agent 6MP
I’m trying to make this sound so cool, but it isn’t. It actually really sucks! So, I’ve started Mercaptopurine aka 6mp. It’s a form of chemotherapy that is sometimes used by IBD patients to regulate their symptoms, as sort of a maintenance treatment. Sounds crazy right? I’m using Chemotherapy as a…
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Soccer Balls, Shin Guards & Cleats…OH MY!
Today is the first day of practice for the Purple Dragons. Tomorrow…first game. I’m not a complete wreck because I do have a great assistant coach that actually played and knows the game better than I do. I’m excited, actually. The kids are pumped and I think it’s gonna be…
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Arthritis vs. Disneyland
This past weekend, Hippo was off for 4 days. If your child is a LAUSD student, then you understand my pain. LOL! What can you do on a Friday with a high energy five year old where you can both have fun? You go to Disneyland! YUP! We sure did!…
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Cell Phones Don’t Work in Heaven
This past year has tested my strength in many ways. Within a few weeks of one another my uncle, my mother’s friend and my grandmother all passed away. My grandmother’s passing was my absolute breaking point. Having to help my aunt with my grandmother’s preparations and all that comes with…
Finding the Light on my Darkest of Days…
I am two days post Remicade infusion. Two days from my 32nd birthday. And yet I am having the worst week ever. Having an autoimmune disease is more than having chronic pain, continuous hospital visits, and fatigue are only a portion of having the disease. I’ve said it before and…