Upon my return from Philadelphia this past weekend, I dove back into helping my grandma move into her new place along with family members and friends. This past weekend was such an amazing time in Philadelphia as I toured the Janssen BioExperience with my fellow IBD advocates. It was a…
Tag: Jpouch
Blog
Read more
Practice Faux Pas
Week 2. Second Practice. Game on Saturday. Next treatment is in two weeks. No pouchitis. IBD fatigue. Here’s what I’ve learned so far about coaching baseball Rule #1: When you’ve had sudden weight gain from steroids or other medications from your chronic illnesses, work out in proper sporting equipment! Okay,…
Blog
Read more
New Baby + IBD= Stay At Home Mom? Work Mom?
Adulting with an Autoimmune Disease is not the best thing. It’s not really a good thing. It’s the amount of responsibility, pressure and stress that makes it harder to deal with. You have work, bills, marriage/relationships, children and the news. But such is life. Some of us with autoimmune diseases…
The Answers To All Of Your Rude, Insensitive Questions
This is for the Insensitive, Ignorant, Healthy Members of the Human Race: It’s the fourth day of the new year, and already I’ve received more than my share of unnecessary comments from people who know I have a gastro disease & arthritis, but love to remain ignorant to the fact that…
Blog
Read more
Cycling For A Cure
I was suppose to be in Washington D.C. this week with the CCFA. But the traveling schedule I had during Thanksgiving to get Jax to and from Kansas to be with his grandparents and father, took a serious toll on me. I am suffering from a full on AS flare…
Crohn's & Colitis
Read more
Trick O’ Treat!
Ahh, yes! Halloween! Hippo’s favorite holiday!…well, one of his favorite holidays….actually every holiday is Hippo’s favorite holiday because creole people love to celebrate everything with food! And since I’ve spent the last 14 years having a love/hate relationship with food, holidays are touch n’ go. It seems my anxiety is…