Love the title? Sounds impossible, right? No, I’m not being sarcastic at all. There are ways you and your little one can still spend a day having a great time with one another. It was much easier to have flare ups when Hippo was an infant because he had his…
Tag: Mommy with Autoimmune Disease
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J-Pouch Life Tools
Has anyone else had issues with having chronic pouchitis? It’s okay, raise your hands. You’re not alone! I swear you’re not. I am in the chronic pouchitis club. Over the past year, I started to lose a little bit of hope because even with the Remicade, I was still getting some…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Radio Silence
It’s 12:25, Thursday morning. My last post was sometime before Thanksgiving. And now I write from the late night/early morning hours. Not because of inspiration or because I have something profound to say. No, I am in just too much pain to go to sleep and, well, I missed you…
Mommy Advice
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Smarty, Smarty Pants!
This probably sounds exceptionally obnoxious, but oh well. My kid is a genius. Literally, one of the smartest kids I’ve ever known. I use to babysit a little boy who went to Mirman, asked all kinds of questions I wasn’t prepared to answer and never found anything intellectually challenging. He…
Happy Birthday, Hippo!
Dearest Hippo, Today is our fifth anniversary. Around this time five years ago I was doing a lot of breathing in my hospital bed, surrounded by your grandparents & daddy and wondering what you were gonna look like. This little adventure we’ve been on has been a trip. Everyday you…