It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Tag: Ulcerative Colitis
Radio Silence
It’s 12:25, Thursday morning. My last post was sometime before Thanksgiving. And now I write from the late night/early morning hours. Not because of inspiration or because I have something profound to say. No, I am in just too much pain to go to sleep and, well, I missed you…
Mommy and The Bad Day!
Someone asked me today if I felt so lucky to have my j-pouch at the risk of sounding completely negative, rude and ungrateful, I answered, “not today.”. What the hell kind of answer is that, Brooke? I mean really. You were dying. Literally, wasting away and bleeding to death. You…
Happy Birthday ‘Merica!
Today is one of my favorite holidays! Not just because I’m a American politics and history junkie. Not just because I’m a Patriot. And not just because I absolutely love fireworks. I love this holiday for most of the reasons I love other holidays, it’s an excellent excuse for people to…
Some Heroes Wear Colostomy Bags
Whether you are apart of the Inflammatory Bowel Disease community or not, by now you’ve probably heard of Bethany Townsend, the former model who bared her two colostomy bags at the encouragement of her husband while on vacation. Her picture came across my timeline from The Colitis & Crohn’s UK…
Life As I Know It
It’s been weeks since you’ve heard from me. Mostly because it’s been weeks that I have functioned without some sort of challenge. Let’s see the last you heard from me I had received my first Remicade infusion treatment. That is when it all got rather…nutty, as Hippo would say. Within…