Have you ever experienced sheer panic?! I mean, stomach drop to your knees, heartbeat drumming loudly in your ears, spontaneous funk sweat, mouth dry as a desert panic? The kind where you are sure this is the end of your life. You are positive death is leaning over your shoulder talking about, “Gotcha!” and these […]
Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to finally connecting face to face […]
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has been brutal. And those of […]
Dearest Hippo, Today is our fifth anniversary. Around this time five years ago I was doing a lot of breathing in my hospital bed, surrounded by your grandparents & daddy and wondering what you were gonna look like. This little adventure we’ve been on has been a trip. Everyday you teach me something new about […]
I’ve got about 63 more minutes before I can close the book on the first 30 years of my life and begin the journey with the next 30. That’s right folks, tomorrow is my birthday! I will be 31 years old. Or as Jax has said, a WHOLE LOTTA NUMBERS! Jax told me that even […]
It’s been weeks since you’ve heard from me. Mostly because it’s been weeks that I have functioned without some sort of challenge. Let’s see the last you heard from me I had received my first Remicade infusion treatment. That is when it all got rather…nutty, as Hippo would say. Within a couple of weeks of […]
