Have you ever experienced sheer panic?! I mean, stomach drop to your knees, heartbeat drumming loudly in your ears, spontaneous funk sweat, mouth dry as a desert panic? The kind where you are sure this is the end of your life. You are positive death is leaning over your shoulder…
Tag: Single Mommy with JPouch
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HealTheVoices
Last week I had the pleasure to be invited by Janssen to participate in their HealtheVoices Conference 2015. I spent three days with 65 other patients and advocates of a variety of diseases like Diabetes, AIDS, MS, Cancer and many others. I also had the amazing blessing of being able to…
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CrazyCreoleLobbyingMommy
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has…
Happy Birthday, Hippo!
Dearest Hippo, Today is our fifth anniversary. Around this time five years ago I was doing a lot of breathing in my hospital bed, surrounded by your grandparents & daddy and wondering what you were gonna look like. This little adventure we’ve been on has been a trip. Everyday you…
Life As I Know It
It’s been weeks since you’ve heard from me. Mostly because it’s been weeks that I have functioned without some sort of challenge. Let’s see the last you heard from me I had received my first Remicade infusion treatment. That is when it all got rather…nutty, as Hippo would say. Within…