I’m trying to make this sound so cool, but it isn’t. It actually really sucks! So, I’ve started Mercaptopurine aka 6mp. It’s a form of chemotherapy that is sometimes used by IBD patients to regulate their symptoms, as sort of a maintenance treatment. Sounds crazy right? I’m using Chemotherapy as a…
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Arthritis vs. Disneyland
This past weekend, Hippo was off for 4 days. If your child is a LAUSD student, then you understand my pain. LOL! What can you do on a Friday with a high energy five year old where you can both have fun? You go to Disneyland! YUP! We sure did!…
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Special Needs Family
I have a love/hate relationship with labels. Like, labels/names you place on people or situations, lifestyles, etc. Labels. Sometimes I love them because they bring awareness, they get people talking and asking questions. But sometimes they are used incorrectly, or lead to embarrassment and shame. Sometimes labels carry a stigma…
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Julian & Jax
I’m not sure if you heard the news yet about the passing of Julian Bond. As someone who loved history and who had grandparents, aunts & uncles that were active members of the NAACP, I grew admiring people like Julian Bond, Andrew Young and John Lewis. During my recent frequent…
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Stroller Life
I love a good stroller. I’m not kidding. I LOVE a good stroller. As a single active mom with arthritis and an autoimmune disease, my stroller has been my best friend. Trips to Disneyland, red-eye flights, early walks, concerts/movies in the park… all of those things where my five year…
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Cell Phones Don’t Work in Heaven
This past year has tested my strength in many ways. Within a few weeks of one another my uncle, my mother’s friend and my grandmother all passed away. My grandmother’s passing was my absolute breaking point. Having to help my aunt with my grandmother’s preparations and all that comes with…