When I was growing up my step father and I bonded over music and baseball, which is interesting because my biological father and I also bonded over baseball and music. I’ve always loved the game. I got to play it for a little while, but not like I wanted too. My mother just didn’t have […]
Last night I found myself on the toilet for the 6th time due to stress, lack of sleep and a case of pouchitis. There was a scream caught in my throat. There was pride laying on my brain. Guilt weighing down my heart. I was wrestling with my emotions and my logic…then I began to […]
Week 2. Second Practice. Game on Saturday. Next treatment is in two weeks. No pouchitis. IBD fatigue. Here’s what I’ve learned so far about coaching baseball Rule #1: When you’ve had sudden weight gain from steroids or other medications from your chronic illnesses, work out in proper sporting equipment! Okay, so let’s just be frank. […]
Hippo has always had a weird relationship with water. He loves swimming and being in the pool. He loves taking a bath. But he HATES taking a shower, and he doesn’t like putting his face in the water. When I say hates, I mean Hippo will turn into an alligator and fight me tooth and […]
When you start a blog, chronicling your life and become known as some sort of expert, you open your self up to any and all opinions and comments. Most of them unsolicited and unwarranted. People literally believe that just because you have chosen to use your platform to help people, you don’t have feelings. So, […]
It’s that time of the year again! The Digestive Disease National Coalition’s Public Policy Forum is upon us and I am currently sitting in the Atlanta airport waiting for my next flight to DC. Since the passing of Affordable Care Act, the assault on autoimmune disease & disabled patients has been brutal. And those of […]
